Genetic Alliance
Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK. Our members and the people they support are at the heart of everything we do.
We advocate for fast and accurate diagnosis, good quality care and access to the best treatments. We actively support progress in research and engage with decision makers and the public about the challenges faced by our community.
We have an experienced and long standing staff team with backgrounds in natural and social sciences and are governed by a Board of Trustees made up of representatives from our member organisations.
Last updated:
22/05/2023
Services
We produce information for patients, families and anyone interested in genetic conditions.
SWAN UK supports families affected by a syndrome without a name – a genetic condition so rare it often remains undiagnosed. We are the only dedicated support network for these families in the UK.
...Contact information
You can use the information below to get in touch with Genetic Alliance